New around here.
My son Kyle was born at 34 weeks in January 2012. The doctors initially thought he was just a…See More
Laryngeal Cleft
European support group for parents and their children with laryngeal cleft
Latest Activity
Mark posted a blog postDate of palate and uvula bifida repair is set
25 of July our son will be operated for the second time. This time his palate and uvula bifida will…See More
amiria ihaka posted a blog postHi everyone, my daughter was diagnosed with type 3 larengeal cleft at 11days old, 1yr and 11 months ago. When she was born i tried to nurse her and she start'd to choke, i tried twice and the second…
Hi everyone, my daughter was diagnosed with type 3 larengeal cleft at 11days old, 1yr and 11 months…See More
Jen commented on Carol P's blog post Help Thick Liquids"Simply thick is great and you can order it from their…"
Stacey Creed commented on Carol P's blog post One month post surgery - not good"Oh, I hope that is not the case. My daughters ENT said sometimes it is a full 6-8 weeks post…"
Stacey Creed commented on Brooke Nico's blog post surgery questions"i highly recommend cincinnati, dr rutter is the ent, he is just awesome."
Brooke Nico commented on Brooke Nico's blog post surgery questions"Thanks Stacey, that helps alot! She's had 12 pneumonias in her 7 years, 5 in the past 12…"
Stacey Creed commented on Brooke Nico's blog post surgery questions"One more thing to add... The ENT doing the reapir said just the opposite, that the risks are small…"
Stacey Creed commented on Brooke Nico's blog post surgery questions"I am not sure how many pneumonias your daughter has had, however, my daughter has had nine in two…"
Carol P posted a blog postOne month post surgery - not good
One month post surgery and my son is exhibiting exactly the same symptoms as before. Coughing and…See More
This European support group is to create more awareness for parents and their children on laryngeal cleft, to exchange experiences and info.
Blog Posts
New around here.
Posted by Keren Horner on May 24, 2012 at 2:13 0 Comments 0 Likes
My son Kyle was born at 34 weeks in January 2012. The doctors initially thought he was just a feeder and grower, but after 10 days his nippling in the NICU had regressed. A bedside scope gave the ENT an initial diagnosis of bilateral vocal cord…
Continue Date of palate and uvula bifida repair is set
Posted by Mark on May 22, 2012 at 21:59 1 Comment 0 Likes
25 of July our son will be operated for the second time. This time his palate and uvula bifida will be repaired. At the same time the specialists are going to look, for the first time in seven years, if the initial repair of our son's laryngeal…
Continue Hello
Posted by Jessie Nairn on May 22, 2012 at 21:21 0 Comments 0 Likes
Hi - I am new to this site. Our 4 year old son, was diagnosed with a LC Type I b last Thursday, during tonsillectomy and adenoidectomy surgery. He has been chronically Neutropenic since he was 11 months old. …
Continue Hi everyone, my daughter was diagnosed with type 3 larengeal cleft at 11days old, 1yr and 11 months ago. When she was born i tried to nurse her and she start'd to choke, i tried twice and the second…
Posted by amiria ihaka on May 22, 2012 at 7:55 1 Comment 0 Likes
Hi everyone, my daughter was diagnosed with type 3 larengeal cleft at 11days old, 1yr and 11 months ago. When she was born i tried to nurse her and she start'd to choke, i tried twice and the second time she was taken from me. She was surrounded…
Continue One month post surgery - not good
Posted by Carol P on May 19, 2012 at 20:52 6 Comments 0 Likes
One month post surgery and my son is exhibiting exactly the same symptoms as before. Coughing and clearing his
throat when he eats and drinks. Swallow test next week, but it is really not sounding good to me.
surgery questions
Posted by Brooke Nico on May 18, 2012 at 22:03 7 Comments 0 Likes
Hi all,
I have a few questions, and am hoping the wisdom of you all can help....
My daughter (7 years) has a Type 1 cleft, found after bronchoscopy last fall. The bronchoscopy was ordered by her pulmonologist after recurrent…
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